Aidpage

Hello Linda, Thank you so much for  your lovely note. You are a special woman. I do use duragesic patches along with many other pain meds including fentora for breakthru pain and oxycontin (I was on dilaudid, we just switched to see if thisworks better). I go to the pain clinic at Stony Brook University, they take care of all my pain, depression issues. I love that Dr. Now on to you. I am so sorry you are so ill. There should be some kind of a cancer center at your local hospital that would provide you with rides to Dr. appts. At the local Catholic Church they have a charity/foundation called "Human Resources" and they are run by a social worker and they help get financial resources as well as rides to drs. appts.  I have a laptop (I highly recommend) if you type in your town, with key words like human resources, financial help etc. you should get some info. The hospital should also be able to help you with some phone #'s. Also, you should call Social Services and get a Social Worker. They will DEFINITLY  be able to help.  There are alot of local cancer charities, you just need to get in "the loop". Especially at your stage. I am so sorry for what you are going thru. My email is teeteeme@optonline.net if you want to contact me I will give you my phone # and we can talk if you feel up to it, or just need a friend. I know most, well all but 1 friend have abandon me since I got sick, my therapist says it is too threatening, it hits to close to home and it makes them think it can happen to them. Just know you are not DISPOSABLE you silly lady!!! and I will hear no more of that!!! I am going to try to do some research to see what I can find on line as far as support for you. I need to know the name of the hospital you use..   Merry Christmas,  Angel Heart,   Theresa

hello, I hope you get approved for the disability, you will get back pay (I think it is from when you first claim you became disabled) Its usually several thousand dollars, that would fix your car. Now don't get discouraged if you don't get approved the first time, almost everyone gets denied their first time, it is how they weed out the people who don't really need it. The link I have attached is something I came accross last night. It has great tips for apply for SSD. and for appealing if you get turned down. It gives you the does and don'ts, and I think they are on the money. I wish I had had this advise when I was applying and then appealing. IF you get turned down, you don't reapply, you follow the APPEAL process.

  www.disabilitysecrets.com

I wish you the best of luck. Also, perhaps you can get a local mechanic to make a contract with you where you pay them in installments.   God Bless. Tee

That is a beautiful story!!  They must be special people!! and they must think you are special people too!! I truly believe what goes around comes around. Treat people the way you want to be treated and you will be rewarded!! i am so happy for you. Your story made my day!! It stories like that that restore my faith in mankind. I hope the new year brings you everything you wish for!!  Tee

You have no idea how much it does. Except for my best friend, most of my friends have abonded me. They "don't know what to say", I think they feel they constantly have to talk to me about my illness, when that is the last thing I want to talk about!! and god forbid they come to visit and SEE how sick I am, well then they feel guilty. So I have figured out that is just easier to forget about me. Thank God for my BF Chrissy, My husband RJ, and  my immediate family(although they live 6 hours away). Strangers have more compassion, so yes, you do bring me comfort!! God Bless.

Aren't you a love, I would love any research you could do. I don't need any info on my disease as I am more up to date than most drs. if you are interested in reading more go to stop sarcoidosis.org, the members support group and read the comments and stories. It is a horrible disease.

what I do need is info on different grants I might qualify for. we don't make very much money so that won't be a problem. I live on Long Island. I know there are philanthropists out there too. Its just a matter of finding them. i am so close to NYC where we know there so many wealthy people. So there are alot of foundations, I just don't know how to find them. We could use cold hard cash for  bills or we will give the bills to them to pay. I could use some free therapy. mental and massages help tremendously. I can't afford alternative treatment but would love to continue acupunture, crainial sacral therapy, reflexology (oh, what I wouldn't do for some of that), Even things like seaweed wraps are so beneficial!! I would love to go to some of the conferences on Sarcoidosis but I can't afford, the airfare and hotel. Maybe one of those charitiies that flies sick people would be willing?? There is an event in Chicago on Feb. 7, that I would love to attend. These arejust some ideas, I would appreciate ANY and ALL efforts and time you dedicated to my cause, it is priceless!! You are obviously awonderful person. What is your name, where do you  live? are you married?  and by the way, no rush, its the holidays and everyone is busy, so after the holidays when you have time, I would love your help!! Thank you, Thank you, Thank you!!  Theresa (Tee)

I am a 42 yr old women who is very sick. I have Sarcoidosis ( the same disease that killed Bernie Mac) I have it in my Lungs, Heart, Nervous System, Joints, and now eyes and skin. I am in excruciating pain all the time. My life has become almost non existant. My husband works two jobs and we are still drowning because of my medical debt. My perscription co-pays alone are over $400 a month. I am on disability and have medicare, but it doesn't cover my meds so I have to have private insurance too $460 month. Otherwise, the remicade can cost anyware between $4000-8000 per infusion, and one of my pain meds is $4000 month. I have extreme chronic pain. I am in bed most of the time and I sleep more than a grizzly bear. this is an awful disease, there is no cure yet. It is in the same family as Lupus and MS. I would cut of my arm to be pain free. Both myself and my Husband are fighting the depression,I finally got him to go to a support group for caregivers to help him deal with the frustrations, resentment, saddness, and helplessness because there is no end in sight.We try to see the light the end of the tunnel, but it is hard. We just have to pray and keep trying new "cures". I am constantly researching new clinical trials and am willing to try anything.  ****update*** The remicade infusions are actually costing $13,000.00 each. That is every 6 weeks.

So the reason for all this jibberish....please someone send me information where I can apply to a charity or foundation or private philanthropist for financial help. We are good people who had something bad happen to us. I am very depressed and if I could have a little financial help it would go along way!!I obviously can't have a regular job, I sell on ebay, answer surveys, anything to earn some money. It goes right to paypal so i don't have to worry. We have all of the regular bills that every couple has, we just have alot more and they will just keep building. Our families try to help, as best they can, but neither are in financial positions to do much. If any individuals can afford to send anything too, you will be in my prayers. We don't want a hand out, so much as a hand up. If anyone wants to see Dr. bills as proof of how many I see, no problem, or if there is something else I can show you, just ask. Please find it in your Hearts to give, the gratitude you will receive in return is neverending. I wish I was the one giving.                                                     

I look forward to getting any information that anyone can give me and thank you in advance. This is My email address as well as the address to my paypal account, if anyone wants to make a donation. God Bless and Have a Happy and HEALTHY New Year!!

                                                           


        This was a on our Honeymoon, a much happier, healthier time!